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Died for Me

29 Mar

closing scene, Saving Private Ryan

My daughter Gianna, like her brother before her, had a rare genetic disease called Mitochondrial Depletion Disorder. Essentially, the cells in her liver could not make the energy they needed to stay alive, so her liver started to shut down. As a result, the doctors recommended a liver transplant. The chances of her getting a liver were slim (she needed half of a toddler’s liver, as she was only 3 months old) and the long term outcome of the risky surgery was questionable at best for her diagnosis. But it was the only chance we had, so we waded through all the blood tests and paperwork and waited for the phone to ring. Continue reading